This organization was founded by current TFS parents, Justin and Kristin Akin. They lost both of their sons within 8 months of each other (Andrew at just 27 months and Matthew at age 5 1/2) to a very rare disease called Hemophagocytic lymphohistiocytosis (HLH).
HLH is a disorder of the immune system in which too many infection-fighting cells are produced and activated, causing damage to organs. While rare, HLH is rapidly fatal. However, with prompt and accurate diagnosis and timely treatment, a cure is possible.
The mission of the Matthew and Andrew Akin Foundation is to provide the latest information on treatment, research trials and overall HLH education; to continue to raise funds not only for education and awareness, but to help assist HLH families transfer their care to the world-renowned experts at Cincinnati Children’s Medical Center; and to inspire families and friends to help in the fight against HLH.
We hope you will take a minute to read more about the foundation at https://www.matthewandandrew.